Wednesday, November 30, 2011

6 Weeks To Go!

Wow, what a journey I've had with The Leukemia and Lymphoma Society's Team in Training so far!

Since my last blog post, I've raised an additional $967.78 and I've run an additional 50 miles!

As of today:
Amount raised: $2,417.78
Total distance run: 162 miles

Thank you so much to everyone who has supported my efforts up to this point, either through donations and/or words of encouragement.

I'm still having a lot of trouble with my right knee. It has stopped hurting while I run, but, especially after my long runs, it swells and becomes painful and tight. I've been to physical therapy and am trying some exercises - along with my ice and ibuprofen regimen. Friends have encouraged me to have an MRI, but I'm afraid that I will be told not to run...and that's NOT an option. Stubbornness comes from both sides of my family. :-)

To date, my longest run has been 10.23 miles! It's hard to believe that I've gone from 0 to 10.23 miles in a little over 10 weeks. Only 6 more weeks and I'll be running 13.1 miles!

My run with the best scenery was just last week, on Thanksgiving Day, at Keeneland here in Lexington. While we didn't run on the race track during the "Thoroughbred Classic 5K", we ran on the grounds what has to be one of the most beautiful horse racing venues in the country.

The Orange Leaf fundraiser was a success - earning over $67 for The Leukemia and Lymphoma Society. That's over $271 of yogurt consumed - 553 ounces (if I'm doing the math correctly)! Quite a few of my friends were thankful that I gave them a reason to eat yummy frozen yogurt - for a good cause. :-)

My current fundraiser is a Pampered Chef online/catalog party, of which 15% of the sales goes to The Leukemia and Lymphoma Society. You can visit the online store here:

http://www.pamperedchef.biz/juliepetroze?page=host-search-results&showId=3419071

The last day to order is December 18th, with products guaranteed to be delivered by Christmas. Please visit the site and consider ordering Pampered Chef items for friends and/or family.

Thanks again to all of my friends and supporters. This journey has been more worthwhile because of you!

If you know anyone who has been affected by Leukemia, Lymphoma or another form of cancer, please feel free to share my journey with them.

http://pages.teamintraining.org/ky/pfchanges12/GoJulieG

GO TEAM!!

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Keeping reading!! The Leukemia and Lymphoma Society is doing great things! 

Below is an example of a drug that has been FDA-approved because of research funded by LLS, but has been picked up for clinical trials to treat patients with many other cancers.

Thanks to LLS research funding, immunomodulatory (IMiD) drugs are helping many blood cancer patients.
Thalidomid® is FDA-approved for newly diagnosed myeloma patients and Revlimid® is approved for myeloma patients who have undergone at least one prior treatment.
LLS-funded investigators continue developing these drugs for patients with myeloma, MDS, CLL, Hodgkin lymphoma and NHL, acute myeloid  leukemia (AML) and myeloproliferative disorders.
Thalidomid and Revlimid are helping other patients too.
Other clinical trials are ongoing for patients with AIDS-related Kaposi sarcoma, and for patients with liver, kidney, ovarian, prostate, pancreatic and colorectal cancers.

In addition:
Two-Drug Combo May Help Hard-to-Treat Leukemia
A combination of two drugs -- the chemotherapy drug Fludara and the biologic drug Campath -- may allow people with hard-to-treat chronic lymphocytic leukemia (CLL) to live longer.

Ruxolitinib
On November 16, 2011, the U. S. Food and Drug Administration approved ruxolitinib (Jakafi oral tablets, Incyte Corporation) for the treatment of intermediate and high risk myelofibrosis, including primary myelofibrosis, post-polycythemia vera myelofibrosis and post-essential thrombocythemia myelofibrosis. Results of two randomized controlled trials in patients with intermediate or high risk myelofibrosis comparing ruxolitinib to placebo (Study 1) or to best available therapy (Study 2) were the basis of approval.


Wednesday, November 9, 2011

Great Beginnings

When I signed on the dotted line on September 19th to commit the next 4 months to fundraising for The Leukemia and Lymphoma Society and training with Team in Training, I had no idea what was in store for me. While I was a little scared and overwhelmed (we're talking $3,500 and 13.1 miles!), I was also very excited and eager to begin this challenge -- knowing that if my dad were still alive, he would have been my biggest cheerleader.

Almost 2 months into my training and fundraising, I'm happy to announce that I've raised $1,450 and I've run nearly 112 miles! Thank you to all of my supporters! The money you have donated is going directly to fund research dedicated to finding the cure for blood cancers, and to developing drugs that also benefit other types of cancer. It's so exciting to see the work LLS is doing!

My initial fundraising effort included sending 100 letters to family and friends, and it has yielded great results. It has been amazing to me the amount of support I've received, not only in the donations, but also in the words of encouragement. What seemed to be an overwhelming task at first now seems easier and more attainable with the support I've been given.

I'm excited about my next fundraising venture! Orange Leaf, which is a local self-serve frozen yogurt place, has given me an entire day dedicated to fundraising for LLS. Anyone who takes a flyer to the Orange Leaf on W. Tiverton (by The Lexington Athletic Club) and purchases frozen yogurt will be donating 25% of their total purchase to LLS. This amount will also count toward the $3,500 I've committed to raise. This fundraiser takes place this coming Monday, November 14th, and lasts ALL DAY.
If you would like to participate in the Orange Leaf fundraiser, you can print this image or show it to the cashier from your smart phone!













As far as training, my longest run so far has been 8 miles.
2 months ago I never would have believed that I would already be running that distance! Other than falling in a local park...while running...in the dark...in the rain...by stepping on a tree nut that I didn't see on the trail, I've truly enjoyed every step I've taken. My knees are giving me a little trouble, but hopefully a little physical therapy and a lot of ibuprofen will get me through the pain. A few of the morning runs have been pretty chilly (lower 30s), but that just means I get to go to Dick's to buy new winter weather running clothes!

After running a 5K, my first race ever!
My coach and my teammates have been amazing. While I'm the sole participant with Lexington's chapter of Team in Training (TNT) this winter season, I rarely run alone, accompanied by TNT alumni and/or my coach. They are helping to make this experience both enjoyable and rewarding.

If you know anyone who has been affected by Leukemia, Lymphoma or another form of cancer, please feel free to share my journey with them.